History #2 – diagnosis – mid-December 2001 – symptoms in Louisiana

January 27, 2007 at 9:58 am | Posted in AIG, Diagnosis and treatment history, Emily Rhinehart, Initial diagnosis of APML, symptoms of APML, Those who supported me during my recovery | Leave a comment

So, after finding the initial bruises in Vancouver but ignoring them, I continued on with life. I did continue to get bruises, and I found myself having trouble walking up the two sets of stairs to get into our condo in Milbrae, CA. But my consulting work, with its travel and desk work, was still doable.

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The second week of December 2001 after the Vancouver trip I went to Louisiana for work. I met my manager Emily, who accompanied on the site visits. I was doing consulting with hospitals, and we went to one hospital. Months later Emily met the hospital staff we met that day at a conference, and mentioned that I had leukemia. They told her they thought something was wrong with me that day, because they had discussed after I left that I seemed pale and my nail beds appeared blue. Creepy.

I must have thought something was up, although I don’t remember it. Emily tells me that at dinner that night I told her I thought I had something wrong, since I was having bruises. She says I thought I had some kind of blood something, but wasn’t sure. She says she downplayed it and told me that she didn’t think anything was wrong. Good thing she’s an infection control/risk management expert and not a diagnostic hematologist.

While in Louisiana, I spent a couple days extra and spent time with my sister Karen and brother in law Rex. That weekend before Christmas they took me to a special dinner at Brennan’s. It was a great event. My sister also remembers me saying something about a blood disorder at that time, but also wasn’t sure what it was. I do remember walking around in New Orleans and thinking I might be sick.

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